North Carolina Spinal Cord Injury Association

SUPPORT, COMMUNICATION,

INFORMATION, ADVOCACY

 
 

Spinal Cord Injury/Disease Resources

 

Understanding Spinal Cord Injury: What you should know about spinal cord injury and recovery.
http://www.spinalinjury101.org
Video Produced by Shepherd Center and KPKinteractive in collaboration with the American Trauma Society, the National Spinal Cord Injury Association and the Christopher & Dana Reeve Foundation.



National Spinal Cord Injury Association (NSCIA): Association that promotes independence, health and well beingof individuals with spinal cord injury and disease through a free help-line, and on-line forum, nationwide chapters, and support groups.
http://www.spinalcord.org
NSCIA
6701 Democracy Boulevard
Suite 300-9
Bethesda, MD 28017
Toll Free: 1-800-962-9629



United Spinal Association
http://www.spinalcord.org

About Our Mission & Services

United Spinal Association is a 501(c)(3) national disability rights and veterans service organization founded in 1946, providing service to thousands of members across the United States.

Approximately 700,000 Americans have spinal cord disabilities as a result of traumatic injury, multiple sclerosis, polio, amyotrophic lateral sclerosis, spina bifida or other diseases. Membership in United Spinal is free and open to any individual with these disabilities, regardless of age.

The mission of United Spinal Association is to provide expertise, create access to resources and strengthen hope, thereby enabling people with spinal cord injuries and disorders (SCI/D) to fulfill their potential as active members of their communities.



The Christopher and Dana Reeve Paralysis Foundation (CDRPF): This organization is dedicated to funding research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders.  The Foundation also vigorously works to improve the quality of life for people with disabilities through its grant program, Paralysis Resource Center, and advocacy efforts.
http://www.christopherreeve.org
Christopher and Dana Reeve Foundation
500 Morris Avenue
Springfield, NJ 07081
Toll Free: 1-800-225-0292



Paralyzed Veterans of America (PVA): The PVA offers numerous publications, fact sheets, and authoritative clinical guidelines for SCI.  The PVA also supports SCI research by way of its Spinal Cord Research Foundation.
http://www.pva.org
Paralyzed Veterans of America
801 Eighteenth Street
NW, Washington, D.C 20006-3517
Toll Free: 1-800-424-8200



Miami Project to Cure Paralysis: The Miami Project has assembled a broad spectrum of researchers, clinicians, and therapists at the University of Miami School of Medicine whose expertise related directly to the problem of SCI and whose full-time focus is SCI research.  The Miami Project is the world's largest comprehensive SCI research center.
http://miamiproject.miami.edu



The University of Miami School of Medicine: The University of Miami School of Medicine offers an easy to use online manual on spinal cord injury health and wellness.
http://calder.med.miami.edu/pointis/index.html



The University of Washington School of Medicine:  The Departmen of Rehabilitation maintains a useful website with information on skin care, bowel and bladder management, and other topics of concern for people with spinal cord injuries.
http://depts.washington.edu/rehab/



Craig Hospital: Craig, located in Englewood, near Denver, Colorado, specializes in the rehabilitation of spinal cord injury and traumatic brain injury.  Federally supported educational materials are available online to help survivors maintain health and wellness. 
http:www.craighospital.org



The Care Cure Community website: This site, founded by Dr. Wise Young at Rutgers University, offers an on-line forum for SCI and other neuroscience research, caregiver and family issues, sex and relationships, sports, travel, equipment, politics, and many other topics.  The site is moderated by Dr. Young, several Certified Rehabilitation Registered Nurses, and veteran SCI individuals.  It is a very helpful, hopeful community that also contains basic facts and other SCI related information.
http://www.carecure.org



The Spinal Cord Injury Information Network: This site is a rich source of information on all topics related to SCI.  Visit this site to find detailed information on any topic involving paralysis including medicine, lifestyle, religion, advocacy, technology, and many other topics, resources, and links.
http://www.spinalcord.uab.edu/


Spinal Cord Resources - Sports and Travel

Accessible Journeys, Inc.
35 W. Sellers Avenue
Ridley Park, PA 19078
Toll Free: 1-800-846-4537
www.disabilitytravel.com

Wilderness Inquiry
808 14th Avenue
Minneapolis, MN 55414
Toll Free: 1-800-728-0719
TTY: 662-676-9475
www.wildernessinquiry.org

Access Outdoors
www.accessoutdoors.org

Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
1-301-217-0960
TTD: 1-301-217-0963
www.dsusa.org

 

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